My Story

[Jennifer and Jack]

http://www.nationaljewish.org/help/testimonials/respiratory-stories...

This is a story National Jewish did on my health if anyone is Interested.

[Linda, Charlie Brown and Beau]

Jennifer ~ thank you for sharing your story.  I hope you are feeling better now that you are back home and with Jack. 

[F, Calla & Luca]

Ditto.

[Jennifer and Jack]

Thanks for letting me share it.. It of course leaves a lot out like the heart infections I got after the surgery but hey, that also is hopefully behind me as well.... I am doing much better, just not being hooked up to an IV line coming out of me 20 hours a day is a miracle for me..

[Jennifer and Jack]

Most peoples holes in their heart are found when they are babies. For some reason mine was not found.. and I adapted to not being able to breathe normally.... I always was tired, short of breathe etc but it was pushed off as other things. I never had an echo of my heart before.....

THe surgery to put in the closure device was pretty easy, the problem was I was septic when they put it in which lead to a bunch of problems. Even now, I have to go weekly for blood work because they believe the devices that they used to close my heart have an infection seated in them and that I will need to have them removed and have open heart surgery to close the holes. THey feel that is the only way they will get rid of the infection.. I am not ready for nor do I want that surgery obviously but if things get to out of hand It will be done at the Cleveland Clinic.. where I have my best shot of survival.. still not a great one but my best... and then I will be the not so proud owner of a trach..for life...

[Maryann,Roo and Tigger]

Jennifer, thanks sharing your story.  You must be feeling much better and hopefully will continue to improve.

[Jennifer and Jack]

I am finding my balance.. between sleeping well, eating well and doing my treatments. If I am very careful to not over do it.. I am able to do the things I really want to do most of the time such as getting out of the house a bit. visiting friends and walking Jack.. Thank you

[Vivian & Mojo]

Jennifer I enjoyed reading your story. I'm glad you found such excellent care and treatment to save your life and are doing well. I have a friend that wasn't so blessed but that was 20 years ago and things are so much better now especially with National Jewish and Dr Nick.

[Jennifer and Jack]

I am so sorry about your friend, even with Dr Nick and National Jewish some CF people just don't live as long as I have.. I am really sorry....I try very hard to live my life in a way that other people with the disease that did not make it would be proud... which includes no complaining and finding something everyday to be grateful for.

[Vivian & Mojo]

Jennifer not dwelling on an illness and complaining really shifts the energy and sends the message of wellness to every cell in the body and they respond. Attitude can really make positive outcomes with health as I've learned firsthand. Gratitude is also excellent and I also believe we can find something to be thankful for. Keep it up...your amazing and an wonderful example to others

[Jennifer and Jack]

I have a lot of love and support which helps me to stay positive.... plus I really do have a lot to be grateful for...

[Jennifer and Jack]

THank you so much!

[Bonnie and Kona]

I just love this story and how you have received such kind and expert care at NJH. Besides all of that wonderful news you also got to meet Jarka and Monty. Now there is a benefit to going to Colorado! Next time maybe you can meet Auggie, too! Love your spirit, Jenn!