Labradoodle & Goldendoodle Forum
Dr. Doodle
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A group for anyone who deals with or knows someone that deals with chronic, terminal, or long term disease. It is meant to be UPBEAT, to share stories of support to, as well as practical ideas of what to do with our doods when we can't care for them.
Members: 17
Latest Activity: Apr 11, 2016
Discussion Forum
The Spoon Theory...
Started by Jennifer and Jack. Last reply by Sue Ryzdynski Apr 11, 2016. 5 Replies 0 Favorites
I often use this to let others know how I am doing, I simply say I am out of spoons. Or I have plenty of spoons. The Spoon Theoryby Christine Miserandino…Continue
JOB LOSS
Started by Lorraine Bromley. Last reply by Susan and Sasha Nov 10, 2011. 4 Replies 0 Favorites
Well, I have told you all about a month ago I woke up with a sore right hand. That turned into a fiasco of health care trips to my local hospital and my Dr then to the surgeon and in patient…Continue
Need Input.. Being Interveiwed!!!
Started by Jennifer and Jack. Last reply by Jennifer and Jack Jul 3, 2011. 9 Replies 0 Favorites
I was contacted by the Boomer Easionson foundation, which is a foundation formed by Boomer, who has a son with Cystic Fibrosis... Anyway, a great inspiration named Jerry who does pod casts for the…Continue
A day in the life
Started by Jennifer and Jack. Last reply by Tina, Clover, Plus 5 More Apr 4, 2011. 2 Replies 0 Favorites
Since we have such a group of loving people I thought it would be good to continue to get to know each other better, I am not saying people with sickness have it rougher then other people, I just…Continue
Comment Wall
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Comment by Lorraine Bromley on April 9, 2011 at 5:45pm
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I have classical type eds as well as my oldest. I wasn't too bad until 18 when my back trouble started. The earlier stuff was bothersome but not constant. My mother was always sickly but seemed to like it and I never gave it a thought. My son was the one who got us diagnosed as we had a dr that wouldn't shrug off his bruising problems and had him investigated. He finally sent us to a geneticist who diagnosed us with eds. He was around 7 I think. I have continued to worsen with pain and joint issues and had to stop working in 2000. I got back to work in 07 in an optometrist office. I love working. Meeting people and talking. Shutting up is the hard part! We are looking at hiring a company to come in and do a good spring cleaning when Harley the puppy goes home in a week. I want to get it all done at once and just won't be able to even with my husbands help. Its not a huge house just I am a little OCD! We had a great day here today and it was t shirt weather. So instead of being inside we did yard work. I was afraid to do too much but was taking frequent breaks when we're sitting there and I said something about wanting to do more and not be too bad for work tomorrow. when my husband said its saturday! He was off two days so I LOST some time there I guess. The puppies are all tuckered out tonight. We took them to the pet store (they don't sell pets just pet stuff) It was good for Harley to sniff and see and meet new things. He did very well in the store. He got a new collar as his old one let go on us. I hope his parents like it. It is a Harley Davidson one. His dad is a Harley rider. Safe bet eh? I think I will head to the hottub now and then to bed. Maybe tomorrow we will hit he backyard, I hope. Talk soon. Your dood looks alot like the two here as well.
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Comment by Jena ~ Dublin on April 9, 2011 at 4:45pm
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Lorraine, those are excellent tools for Jennifer, or anyone to remember while being down and out. I was diagnosed with Ehlers via Emergency Surgery. I had an IUD (please no judgement!!!!!!) inserted & it did what the medical community calls travelled. It didn't stay in place. I had a great deal of pain, but the brochure said I would so I let it go. I couldn't handle it after about 2 weeks, it just got really bad. I went to the Dr and in the office, they couldn't find it. I was asked over and over again if it came out. An X-ray was done and it was seen but not found. The next morning I had surgery to find it to get it removed. It travelled through my uterus and other organs to make its way through my skin to get out, it was like my body rejected it. My Dr thought I actually had Marfans but thankfully JUST EDS type 3, hypermobility. It explained a lot of things in life.. Like why I could NEVER EVER hold a baby to term, OR why my shoulders always popped out of place or hip or why I was so flexible, even now. To type is painful, my nerves are always being pinched because my tissues and such are not strong enough to stay in place and support them. It's very painful and can last a long time. I have to watch how much activity I do otherwise I pay for it later on in the day, just like the article said, the spoons. I have to give up a spoon. We are in the process of trying to sell our home so we can move to a ranch style or at least to where the master room is on the lower level.
My DH and I have a sleep # bed, we love it and so do our dogs!!!!
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Home is alot more restful than hospital but if treatment is not available at home then don't hesitate. Do you have homecare where you live. We have community care access centers. Your Dr or yourself or family call and they assess your needs and prescribe what they can do in the scope of the home. I do not qualify but my grandmother who needed help with ADL's did. I hope if there is such a system where you or others live that you take advantage of it. Just because your a nurse doesn't mean you have to look after yourself. Jack will be fine. Some time you might want to get him those interactive toys that make them think on how to get the treat out as that helps them tire out as well. You could get a laser pointer and use it from bed to get Jack to hit on things and retrieve them as you point them out. Working on the names of the objects while at it. He does all the work and you don't have to expel much energy. Just be extremely careful not to get it in his eyes as it can blind them and humans too. Hope your better soon.
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Comment by Jennifer and Jack on April 9, 2011 at 12:48pm
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Is feeling the guilt, I want to take Jack out and work on some training with him, I wanted to do get him some exercise and all I am doing is resting. Days like this make me feel so bad for him. I am not feeling well at all and am trying to avoid being admitted. It was already suggested to me to be admitted, I refused. I get better being home.
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I would like to know how the people with Ehlers were diagnosed?
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We slept on one and both of us loved it! I am not sure where Neely would sleep though he usually sleeps across the whole end! Maybe he would be 25 minus 9 on the left?
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Sorry I have not been around so much. I had a great beginning of my week which of course lead me to overdoing it and now I am paying dearly, I hate when I over do it but I would not take it back I had fun this week. Just now I am getting sick again, but oh well, I am enjoying chat tonight and hopefully tomorrow I will catch up on the board. I hope you guys all have a good peaceful sleep tonight
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Comment by Tina, Clover, Plus 5 More on April 8, 2011 at 5:34pm
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It's been a rough couple of days. The farmers have been in the fields stirring up the dust. Allergies go crazy, migraines start, then fibro systems intensify and the next thing I know all my energy's gone. I've been trying to catch up reading the comments, but my brain doesn't want to cooperate. Somedays it seems like I get 5 good minutes in every hour or two. Okay enough with the whining.
We are looking for a new mattress/box springs. I like the Tempurpedic but DH doesn't. Do any of you have the sleep number? Do you like it? Is there any you would recommend?
May we all have better days ahead. I want spoons!!!
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Jena - would love to visit, but no matter where I go I always get homesick for Iowa.
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