Dr. Doodle

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Comment by Tina, Clover, Plus 5 More on July 27, 2011 at 1:24pm

Jennifer, you just go right ahead and vent.  Enjoy yourself

Comment by Susan and Sasha on July 27, 2011 at 1:00pm

Hey ladies...

I've been away...and was just checking in to see how my DK friends are?

Wow...sounds like you've been going though some difficult times...and I'm so sorry to hear that!

Jena...I was just going to send you a "buddy check"...to see how you and Avery are doing?

I'm so sorry that you've been gong through so many issues lately  my friend.. I'll be keeping you in prayer! 

It sounds like you're doing some fun things though...and I'm excited for you about your trip to Florida to see your family!

Let Avery know that I was asking about her...

 

Comment by Jennifer and Jack on July 27, 2011 at 11:43am

I know people mean well but it annoys the living life out of me when people who have no concept what it is like are the ones so full of advise.. I experience that a lot. So the easiest response is, I am good, okay or fine. I always kick myself if I end up saying something more then that because then comes, " You are overdoing it.. you are this, you are ... blah blab blab. LOL No actually you have no clue what I do or what I think. This is kind of fun to vent incognito!

Comment by Tina, Clover, Plus 5 More on July 27, 2011 at 6:25am

Jena, sounds like you have been going through alot.  Brain fog on top of everything would make it irritating for sure.  I hope you start having some good days soon.  Have a great time in Florida with your family. 

Comment by Tina, Clover, Plus 5 More on July 27, 2011 at 6:20am

Jennifer, the one I hate the most is "You need to be .....".  How do they know I need to be doing whatever it is. 

Comment by Jennifer and Jack on July 27, 2011 at 6:13am

Wow sounds like you have a ton going on as well.. NO FUN...  am open to what your thoughts are for sure.. as long as it doesn't come in the form or you should, I would, your not making smart choices, or I hope you make smart choices.. or If i were you I would.. all of those things make me nuts because it is easy to give advice when you are not in the situation, but I am much more open to it when it is someone who has been there and done that.

Comment by Jena ~ Dublin on July 27, 2011 at 12:57am

Jennfier, I am so sorry you arent doing well. It's been almost 2 months since I have been on DK due to my own health issues. Tina, like you I have brain fog so I start doing something then I either forget what I wanted to do, or I get easily distracted with my four little girls around. ANYWAY....
You are totally right about the unwanted advice, people staring, and irritated! I had an older gentelmann tell me I should be ashamed for parking in a handicapped parking spot the other day. I told him I hope to grow old like he is! Totally true!!!! My dad gave me that one!
You mentioned you were thinking of moving and renting out your house to move closer to family. Dare I give you wanted advice or where you just putting it out there, your thoughts? I want to respect your feelings so let me know!
WOW, what is going on with me? Ummm, I have had some major circulation issues and on Heperine (Jennifer being a critical care nurse & having a PE *Lovenox*) yes self injectionable shots 3 times a day. Pill form is not safe for me because it doesnt get my blood "thin" enough. It's been a big whirlwind! I also had another blood clot in my left leg along with a bakers cyst behind my knee, all at the sametime, talk about additional pain! I went to seattle & had VENOPLASTY done in my major veins as well to help the blood flow to my brain. Its more commonly used for people with MS, but I have neuropothy issues so my husband and myself thought it would be a great idea. My hemotologist was pretty excited about it after I did it so was my PA for Rheumatology is very excited about it. I found out I also have May-Thurners Syndrom so I got a stent in my left common Iliac vein. I dont know with EDS I am totally scared it is going to travel. I am told to be more worried about it clogging, great thanks!!!!!
With Summer FINALLY here in the NW, I have been trying to make the most of it. Taking my girls (and Dublin of course when its safe due to the heat) out as much as I can and doing things I love. Them and photography. Now that I have the pictures, its time to concentrate and process them! There of course has been stuff in between but its family stuff, which of course makes my symptoms even worse. It got to apoint to where my DH wouldnt allow me to talk to one of my sisters becuase of what it did to my health. He was right even though her circumstances tore me in peices. I am very excited though I get to see my mom, dad and other sister for the first time in a long time come mid next month. I am flying to FL to visit them. Just me. Not sure how that will work out, I wont know what to do with myself!!!! HE HE HE My family has NO IDEA I am coming, my moms best friend and I are in on it together! VERY FUN!
OK, DH is coming to bed and kicking me off for my rest too! Good Night

Comment by Jennifer and Jack on July 26, 2011 at 7:42pm

I have been on oxygen before.. and with a lot of exercise I was able to come off, that was a few years ago, Last November on Thanksgiving actually, I ended up intubated and I had one complication after the other.. not only with my lungs but also with my addison's disease and to boot I got a PE ( blood clot in my lungs) Since then I have lost a lot of lung function. It was very hard for me to come off life support and without a doubt Jack is the reason I did. I sort of took myself off oxygen after about six months because I wanted to go back to work one day a week, ( I still work as a nurse) however in the past several months, I have been declining and declining, including angina and all kinds of bone pain, fatigue to where I can lift my head off the pillow, not like me at all, The recently checked me at my local doctors and my oxygen was only at 87 at rest, and well I walked 50 feet and I was well below 84. It was a nightmare, so I am on a lot of oxygen right now. I told work that I will come back on August 8th and I am hoping by then I can be off the o2 for the six hours I work, The hospital will not let me work while on O2, I tried everything...but they are right, can you imagine me trying to do CPR or run a code on someone when I can't breathe?? Not fair to the patient, since I am a Critical Care Certified Nurse, I need to be able to "perform all the duties of a critcal care nurse" I understand but it still stinks.. I have been trying to expand my lungs, I walk with my oxygen in a back pack at least a mile a day. I just don't know.... Steroids help... I actually damaged my right side of my heart from walking around so hypoxic... so I am more leary to take off my oxygen this time.... without doctors okay. Still waiting for insurance to approve of me going to National Jewish Hospital.. I am considering renting my house out and moving closer to family and friends Two of my neighbors that are good friends moved so I am pretty much here by myself except when my other friend is here, which is not that often.... I usually suck it up, I don't vent to the people in my real life because like I said it just gets me unwanted advice.. instead of an ear.. so here I am on Dr Doodle, sort of incognito venting.... LOL...

The thing is I do feel a lot better on the oxygen, it is just hard to swallow my pride and wear it, people stare at me.

 

Stupid pride.... We are going to get to the bottom of this...Molly Rose coming will be a big distraction for me which will help...

 

Thanks for always lending a kind ear... you are so sweet

Comment by Nancy, Ned, Clancy, and Charlie on July 26, 2011 at 6:17pm

I am sorry to hear this, Jennifer. Once you are dependent on oxygen is this always so, or can you look forward to the possibility of improvement?

Comment by Jennifer and Jack on July 26, 2011 at 12:07pm

meant to say now totally dependent, not not, I wish I was not..

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