Jess K -- one month home

[The Kleins, Tempe, AZ]

Jess has been home one month today.
We have hit a record of so many consecutive 100 plus degree days with a promise of a “cool-down” in 90’s. This should be refreshing. My car thermostat registered 111 degrees for the outside temp yesterday afternoon. Phoebe pokes her head out the doggie door and decides to stay in. Smart dog. It's just too soon to be this hot.

Jess has been good to not go past his 48 oz liquid intake limit. This includes anything that could melt at room temp, so an ice cream treat is counted as a liquid.
I tried to do it, I could not. Jess is always thirsty. His attitude? Terrific.

Many of you have emailed me with concerns since the bloging has stopped. We appreciate your continued good thoughts for Jess. Yes, I am running ragged but it is getting easier. However this week will be a little crazy --we have three trips to Mayo and I close down my classroom for the summer. Today’s’ agenda will include a visit with his colleagues at his office (a first) and an afternoon trip to the cardiologist. Thursday will begin cardiac rehab and Friday a follow-up with the remarkable surgeon with the instincts that saved Jess’s life.

Last week one of Jess’s wonderful “sister-cousins” came down from Washington. Luckily there were no Mayo trips, and Jess had her undivided attention on the days I was at work. I came home to a clean and organized fridge and a new sodium-free pantry. They were able to take in a couple of movies and took a few walks together. Then there was that one morning when I left for work and Barb was still sleeping. I get the call that Jess is missing. I run out of the building (note to self, do not run when a meniscus has been removed – too late for that) and tore to the car. I peel out of the school drive and who do I see across the street with a wave and a sweet smile? I made a u-turn and swing open the door, “Get in the car!” I didn’t have to get on him too much since Barb let him have it when we arrived to the house. My mother thought the episode was funny and thinks he is just adorable. Isn’t he just?

There has been a slow and steady transition since his homecoming. This doesn’t mean that I have stopped waking up in the middle of the night to see if he is breathing. My worry and concern is always there. His well-being consumes me.

He is doing more, careful to nap in-between activities. Jess has begun to drive (short distances with supervision), helps with dishes, and can run a laundry. We have had visits with friends and short shopping trips. His t-tube will come out at the end of the month. As mentioned in a previous post the defibrillator will be his 60th birthday present towards the end of June. Jess is excited that cardio rehab is finally happening this week. We hope this will be the beginning to strengthen his heart, but no one knows at this point what he will be able to do. We’ll proceed with caution, and hope for the best. With a combination of super-low sodium home cooking, fluid restriction, medications and exercise, Jess has a decent shot at avoiding a transplant. I hope I’m right.

A great day to all and oodles of Doodle Kisses. J,J, P and H.

[Missi]

Janet, I'm so glad to hear an update from you. It sounds like your lives have been flipped upside down, but that you both are adapting and thriving. A Defribrillator is an interesting idea for a 60th bday present....very creative. :-) I would have loved to see him waving from accross the street at school! I'm sure his face was pricelesss. Tell Jess that he is still in many prayers and give Phoebe kisses from Lizzie. You're doing great, Janet.

[LuvMyAbby&Kaela]

Glad to hear the positive news Slowly but surely. Thats great!

[Michele, Biscuit & Mo]

So glad to hear the update! Tell Jess that Michele and Penny send all big hugs. Can't believe it's been a month already! And a couple of weeks since we saw you guys at the dog park. I bet I'd be amazed at his improvement just in a couple of weeks. Had to say, that story of Jess disappearing was a little cute... but I'm sure it turned you inside out. There wouldn't be a streak of stubborness in him, would there? :-)

[Adrianne Matzkin]

Janet,
So happy to hear from you. Now that we know how Jess is progressing, how are YOU feeling? I guess no news is good news on that subject. You are never far from our thoughts!
When we come out to visit Mom, sometime this year, if you are up to it I would love to share a cup of coffee with you,
Take care,
Adrianne

[Susan, Zeke. Lily & Jasper]

It is sooooo wonderful to hear that Jess is continuing to improve. And you lady have my deepest respect and awe. It seems your energy is endless, though I know this cannot possibly be true, but you are truly amazing in all you accomplish. It is so good to know that help has come from all directions also. What a Godsend! I look forward to your postings on Jess's progress but I honestly don't know when you find the time or energy to put your thoughts together. Your perserverance, courage, devotion, and love are an inspiration. I just hope if I'm ever faced with a similar situation that I'm half the woman you are! Lots of Doodle Kisses and continued prayers.

[Yvonne, Riley, Murphy and Luca]

I was wondering as well how everything was going at home, but I figured no news was good news. I am so happy that things are looking up. I pray his heart keeps getting stronger but it sounds like he is being cooperative with the new restricitions so that is a plus for both of you. Keep the faith!

[sandy b]

I too look for your blogs and thank you for the update. Will continue to send positive thoughts your way.

[Karen, Jasper and Jackdoodle]

I have been thinking of you and Jess, and I'm thankful for the update. Continued prayers that Jess's heart will keep getting stronger and everything will be fine.