Dr. Doodle

Comment

Comment by Ricki and Tara (doodle) on April 11, 2011 at 9:39pm

While they don't make mattresses to help one breathe better, a mattress laced with chemicals could certainly aggrevate an existing respiratory issue. This is an interesting web site. And while it is NOT valid research it is interesting to read of other peoples experiences:

 

http://chem-tox.com/guest/guestbook.html

Comment by Jennifer and Jack on April 11, 2011 at 7:18pm

I know someone who had Fibro, though her symptoms have been gone for over 15 years.. but when she was sick a lot, she used a magnetic mattress, that seemed to help her.. I wish they created mattress that helped people breathe better!!!

Comment by Ricki and Tara (doodle) on April 11, 2011 at 6:12pm

OH!!! No, I haven't seen those. It may be because motors and even electrical wiring  can gass off chemicals enough to effect a sensitive person. There maybe some out there but I just haven't seen any.

 

Cool that House has EDS info on it!!  I hadn't heard of it until I read you DK'ers posts in this group! Sounds nasty!!

Comment by Lorraine Bromley on April 11, 2011 at 5:55pm

No I meant the type that put you into different positions. 

 

HEY THE TV SHOW HOUSE HAS AN EHLERS DANLOS EPISODE ON!!!! 

Comment by Ricki and Tara (doodle) on April 11, 2011 at 3:21pm

Lorraine, I only have experience with the Lifekind organic mattresses. I have their innerspring mattress but would probably take a closer look at their foam mattresses if I ever do it again as I ended up putting a natural foam topper on mine anyhow. But there are other good organic mattress companies out there.

 

I'm not sure what you mean by "motion". Do you mean a waterbed type system? If so, I don't think it possible to get any type of non-chemical bed that would hold water. The vinyl used in that type of bed would be from chemical sources.

 

Comment by Lorraine Bromley on April 11, 2011 at 2:00pm

Ricki do you have a type of organic mattress you recommend? I would be interested in a motion type one if you know of any.

Comment by Ricki and Tara (doodle) on April 11, 2011 at 9:30am

@ Tina-If you have fibro and are looking for a new mattress I strongly recommend you thoroughly research mattresses before buying. Don't just buy for the comfort factor alone.  Commercial mattresses are full of chemicals which are mandated by the government and most people with fibro are or have the potential to become chemically/environmentally sensitive. My recommendation is an organic mattress!! They come in foam or cotton/wool etc. and can be made to order. Here are a couple of links to articles about commercial mattress issues:

 

http://www.ehow.com/about_7237289_toxicity-tempur_pedic-mattress.html

 

http://www.viewpoints.com/Sleep-Number-Bed-by-Select-Comfort-review...

 

 

Comment by Lorraine Bromley on April 10, 2011 at 8:51am

Truffle hunting eh? Are you involved in the restaurant business or just your own use? What did you work at prior to 2005. It is something though what these doodles are able to do. Some trained for hunting, working dogs as well as friendly competition. Your life will be so busy with the girls at that age. Enjoy teenage years and try and live through them. I took alot of flack at that age as they let alot of their anger about my condition out at me then. They also knew I didn't have the strenght to follow through. My husband let them away with too much and didn't back me up either which made it worse. Make sure your husband and you stay on the same page infront of the kids at all times and if you need to leave the room and discuss differing opinions do it that way instead of infront of the kids. If they see a crack between the two of you they will find it. My son always was different because of his eds and had trouble at school with injuries and gym and being fragile he was teased. When he got a name for it atleast he was empowered to know that he wasn't the problem that the disorder was. He had alot of issues with depression at a young age. I did the same with my hair. Now blow drying for work is a chore on most days as the shoulder is screwed and hurts to hold the blow dryer up. So I prop my arm into my body and then bend over with my hair hanging over my face and do it that way. The make up I have to do that what too. I have a brace for my thumb on my right hand that helps with that pain. You need some one to bring you a closet at a time to go through so that you stay still and they do the purge on your say so. I was doing really well when our sons finally moved out and got so far then kinda life started again and got in the way. I wish I didn't have OCD so that I could sit  in more clutter and dirt and be happy no matter what. It is awful when my happiness depends solely on the cleanliness of my house. When it is all clean I get this feeling of lightness that allows me live, but we all know a house doesn't stay clean and one day down and its a disaster in my eyes. The weather turned bad again today wet thunder hail so poor puppies are inside today. They were out on errands with DH and so they are napping now. I kinda feel bad for the little puppy going home as it is just not like here where he can be uncrated and with us 24/7. They should have named him shadow as he is right at my feet no matter what I am doing. Not in a clingy way just loving. He likes snuggles too. Neely like his butt rubbed with my foot and prefers being rubbed with my feet so I don't get as much face time as with the puppy. They are all so different. TTYL

Comment by Jena ~ Dublin on April 9, 2011 at 10:39pm

Yes Lorraine, I have 4 little girls, ranging in age from almost 13 in 11 days, to 4 years old.  We did not know I had EDS when we had 3 of them, we knew on our 4th.  I believe only one of my daugters has it but we will NOT get them tested until later in their years.  They don't need to know UNLESS they want to do sports that would require it.  THEN of course we would, we would owe it to them to do so. It is so funny reading your post, noticed it at 18, ME TOO.  Progressivly got worse, ME TOO...so many things the cold, the bruises and so easily the flexability...all the symptoms.   OHHHH, so jealous of your nice t-shirt whether.  I pray we may get some SOME DAY.  I live in OREGON and man this spring has been WET and COLD.  We have not had a day over 65 yet.  This is  not normal for us so its really starting to get to me.  I moved here because this is where my husband is from (he was in the service & I really strongly disliked my family at the time, we are getting better but so glad to be 3500 miles away from them) but man I am ready to hop on a plane to Florida and see family.  I don't care if I sleep on the beach, its 85 degrees in my hometown right now!  Today was dry, I was thankful for that!!!!!  I have not been able to work since March 2005.  Right now I couldn't imagine going back to work.  The pain just to take a shower, just to button my shirt or get dressed, it seems like it take EVERYTHING.  Like did you read that article on the spoons?  Just to get up and get ready, and that isnt doing the nice get ready, its the hurrry up and get ready I am DONE.  All my spoons are gone.  I really have to re-energize.  I simplified my getting ready, I had really long hair, I CHOPPED it off.  I went from long to towel dry and it's dry.  I hardly wear make - up anymore because it hurts to do it.  I guess the nerve issue has a lot to do with that too.  My husband is very understanding.  He is an amazing man and I am so thankful for him.  There are not many men out there that would put up with a disabled wife at 34.  I wish I was OCD on the clean-ness of our home.  Because I hurt so bad, it really has gone.  I cant do a lot of things so I dont do it.  My children do what they can but considering their ages and school work, they can't do to terribly much.  They do have more than most girls their ages, but I still let them have a life too, maybe moreso because I feel bad and I don't want them to have fun even though I am miserable.  Does that make any sense?  Do you ever get like that?  Getting a cleaning company to come out sounds like just what you need.  I just need to work on cleaning, room and room THEN purging.  The more I purge now, the less I will have to move when we are able.

Thanks on the note on Dublin!  I love him, he is a standard his dad was HUGE and Mom was normal standard.  We are expecting him to be pretty tall too.  He is getting there now & I just love it.  I am 5 ft. 11 inches so I am glad for a tall dood.  I am wanting another standard size too.  My husband is training Dublin for truffle hunting with our newest addition Lagotto Romagnolo.  She looks just like Dublin and will be about a med size.  She will be trained as well.  She is doing well, but boy I tell you, Dublin is awesome at it.  He has proven himself well only the first time out in the field. Sorry, I love to bragg about him.  He is our first labradoodle.  I just can't seem to get enough!!!!!   Sorry, I have gone on and on as well.....

Comment by Lorraine Bromley on April 9, 2011 at 5:49pm

So do you have any children? It is amazing what our eds bodies will do to be different eh! The ranch style will be so much nicer. We had to do the same and miss the farm but love the house. It explains alot and it also creates alot of questions having eds. I wish I NEVER gave it to my son. If I had of known about this before I had kids I wouldn't of had them. Thankfully only one out of three has it. My husband is great at doing everything so that helps. Hope yours is too,

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