Labradoodle & Goldendoodle Forum
Dr. Doodle
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A group for anyone who deals with or knows someone that deals with chronic, terminal, or long term disease. It is meant to be UPBEAT, to share stories of support to, as well as practical ideas of what to do with our doods when we can't care for them.
Members: 17
Latest Activity: Apr 11, 2016
Discussion Forum
The Spoon Theory...
Started by Jennifer and Jack. Last reply by Sue Ryzdynski Apr 11, 2016. 5 Replies 0 Favorites
I often use this to let others know how I am doing, I simply say I am out of spoons. Or I have plenty of spoons. The Spoon Theoryby Christine Miserandino…Continue
JOB LOSS
Started by Lorraine Bromley. Last reply by Susan and Sasha Nov 10, 2011. 4 Replies 0 Favorites
Well, I have told you all about a month ago I woke up with a sore right hand. That turned into a fiasco of health care trips to my local hospital and my Dr then to the surgeon and in patient…Continue
Need Input.. Being Interveiwed!!!
Started by Jennifer and Jack. Last reply by Jennifer and Jack Jul 3, 2011. 9 Replies 0 Favorites
I was contacted by the Boomer Easionson foundation, which is a foundation formed by Boomer, who has a son with Cystic Fibrosis... Anyway, a great inspiration named Jerry who does pod casts for the…Continue
A day in the life
Started by Jennifer and Jack. Last reply by Tina, Clover, Plus 5 More Apr 4, 2011. 2 Replies 0 Favorites
Since we have such a group of loving people I thought it would be good to continue to get to know each other better, I am not saying people with sickness have it rougher then other people, I just…Continue
Comment Wall
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Comment by Jena ~ Dublin on April 3, 2011 at 12:52pm
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Hi Lorraine and Tina~ I also have EDS, I also have Fibro...I am being treated here in Portland by a great system, OHSU but not sure about the Dr.s as of yet. My Fibro Dr is great, she really listens to me....any suggestions on tests to run, tests to stay away from...does anyone have nerve problems? I have nerve neuropathy entrapment because of the EDS....does anyone have MS because of the EDS link? Has anyone heard of CCSVI?
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Comment by Lorraine Bromley on April 3, 2011 at 12:20pm
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I don't care about the private stuff either. The more people hear about Ehlers Danlos Syndrome the better.
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Comment by Tina, Clover, Plus 5 More on April 3, 2011 at 12:19pm
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I just discovered this group and wanted to pay it forward. Living with fibromyalgia I never now if it's going to be a good day or not so and some are better than others. The one thing that stays consistant is any day with a doodle or non doodle makes it a whole lot better.
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Hello everyone. I have chronic pain and degenerative disorder. I have Ehlers Danlos Syndrome. I hope everyone looks it up as it is very rare but likely more to misdiagnosis. My eldest son has it as well. Luckily my other two boys do not. My mother and grandmother and greatgrandmother had it. It is likely that my sister and my uncle also have it yet don't have a diagnosis. Luckily I had a brilliant dr who left practice to be the canadian Nasa Dr. I wasn't thrilled he left but he was part of the practice of drs he left me with and I knew very well. They have been well informed and very supportive. My son is a struggle as he doesn't follow alot of the instructions for his own health. I think he has some mental issues that get in the way plus just being a young guy that wants to be normal and is out to prove it. When he can. He is worse off than I am and that bothers me more than any pain I endure. The loss I have suffered is nothing to the loss of the person and mother I used to be to them. If I could only be that person for them again.
Thankfully we have the best type of the disorder and won't likely die of it. Actually my family has a longevity line.Gramma is in the nursing home now at 89 and is suffering with chronic pain daily and has just broken another rib. She is also her own worst enemy. So am I if I am truthful. But that is only for a split second.
I also enjoyed yappy hour when I honestly hit a button on accident and ended up on chat! I haven't been back since but will likely be back again. When do you actually plan to get together.
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Comment by Jennifer and Jack on April 3, 2011 at 9:24am
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Oops I am sorry, I misunderstood, I thought it was private, It doesn't matter to me, honestly, I don't have anything to hide, I just didn't want to subject people that didn't want to be subjected to hearing about stuff they didn't want to hear about, I know a few people who would rather not and I was trying to be sensitive to them. I think this group is going to be great. Nancy, Thank you for joining, I agree with you, We all have something to offer, and at any point in our lives we can have drastic changes. Suzanne, we prayed for your family today. Just so you know...
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Comment by Adina P on April 3, 2011 at 8:06am
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Hey everyone, Just wanted to let you know that this group is NOT a private group. It was a suggestion in case prospective members would WANT more privacy. As it is it is like any other group and anyone can see inside and activity will appear on the main page. IF you would LIKE it to be private I will have to dismantle this group and re-create it again to make it private. Which is okay with me.
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Comment by Nancy, Ned, Clancy, and Charlie on April 2, 2011 at 11:32pm
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I wanted to join to lend a supportive shoulder. Luckily, I don't have any health issues right now, but one never knows what the future holds. If we don't support each other, what does that say about us?
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Suzann how are you doing today? Did you get sleep last night or was your mind going a million miles a minute? We are sending our love.
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Thanks Nancie, I am glad you joined our group, It was a lot of fun getting to talk to you guys last night., I was actually having a crumby day and then once I got into chat, started laughing and stuff, it turned my day around. I am hoping for the same sort of schedule as your friend, I would hate to have to be at the hospital before then, and if that is the schedule Jack can go and we will have plenty of time to get him to day care. I am glad you don't "qualify" for the group but we are happy to have you. You are such a sweet, kind and caring person.
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Comment by Nancie & Gracie Doodle on April 1, 2011 at 10:11pm
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Jennifer...I don't remember if I got to mention everything about National Jewish Hospital. My friend said the staff and doctors were absolutely wonderful. She was there at 8:30 every morning going through tests and treatment until 4:30 every day except on weekends. She has only positive things to say so you will be in good hands! Let us know when you are going!
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