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Tomorrow is Good Friday, and I hope it is just that.
Jess will have a scan to see what his heart is doing. He is being weaned off Milrinone, which is a medication to support left ventricular function .

Today was going great. Jess was motivated to do his walker walk and also spent ten minutes on a reclined elliptical machine. He work with two male P.T.s, who were talking to Jess like personal trainers. Jess felt motivated and really saw progress from his week in hindsight.

In the afternoon Jess had an assessment of his right ventricle pressure. This test is done daily. Although there has been no change in his readings, this nurse explained that his heart was weak. ( think we knew this) It was her delivery that threw us both. I knew her words took Jess aback --- after such a great day. Maybe we didn't want to get smacked in the face with reality. His lungs are clear and his oxygen is usually at 100. These are good things. There is the indication of fluid retention -- not visible. We are then told "you can't always see it."

By appearance, Jess looks unbelievable. But we will see what the scan tells us tomorrow.

Hoping tomorrow is a "Good Friday" for all.

Doodle kisses and sweet dreams, J, J, P and H.

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Comment by Lucy on April 12, 2009 at 3:59pm
Our Blessings to you and your family !!! Jess is in our prayers for a great scan tomorrow!!!
Comment by 2SCdoodles on April 10, 2009 at 6:58pm
No indication of fluid retention is still a positive sign! Oxygen at 100 is another really good sign! Clear lungs! All good signs. Hope the scan reveals yet another POSITIVE sign!
Comment by Nancy, Ned, Clancy, and Charlie on April 10, 2009 at 1:38pm
You and Jess know he has made great progress. The nurse, who deals with this type of stuff daily, may not be so awed by what he has accomplished. We all are and will continue to be his cheering section.
Comment by Yvonne, Riley, Murphy and Luca on April 10, 2009 at 12:08pm
What a difference a few weeks makes. It sounds like he is improving steadily. Hope it is a Good Friday for all!
Comment by Michele, Biscuit & Mo on April 10, 2009 at 9:58am
Yes - stay focused on the "glass half full" philosophy! Jess is doing so amazingly well and I'm now convinced that must be part bull - what strength he has. Keeping you guys in our prayers today - and Penny sends big hugs to Phoebe-Doo!
Comment by Adrianne Matzkin on April 10, 2009 at 8:36am
Sounds like this nurse's view of life is 'glass half empty'. What a putz!!! Good luck on the scan - we are all anxious to hear the results - keeping our fingers crossed and prayers strong!!
Comment by Susan, Zeke. Lily & Jasper on April 10, 2009 at 8:20am
GREAT News !!!!!!! Prayers and lots of doodle kisses for a Good Friday!
Comment by Susan on April 10, 2009 at 8:07am
Jess is doing amazing things! An Elliptical?? Wow! Sorry that you had a nurse say something to dash your hopes. It doesn't change the fact that he is doing great! Keep your miracle man going and good luck today!
Comment by Beverly Wright on April 10, 2009 at 6:36am
Janet,
It is great to hear that Jess is feeling good about his progress! Stopping the Milrinone is a big step!! We will be praying that today goes well!!!! Give our love, hugs and doodle kisses to Jess!
Bev
Comment by Missi on April 9, 2009 at 10:38pm
Darn those nurses and their bad wording! Haha, we're all guilty of it. Glad he had a good day with the PT (personal trainers..:-D). Great progress! Weaning off the milrinone will be another huge step! Love to hear of the steps forward. How is phoebe-do? And Hobbes? Behaving themselves, I'm sure. :-)

 

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