Hello From Jack and me!!

[Jennifer and Jack]

Hi,

I was looking around on here and realized I had a lot of messages that I never saw. I am SO sorry.  I haven't been on here very often, no where near as much as I would like to be.   

Life is incredible right now, so I guess it is a good thing. So many of you have asked how I am doing…. I post a lot on my FB page, feel free to friend request me (Jennifer Champy)  

As you mostly all know I had a massive life saving surgery in October of this year and I went from being in Hospice to doing New Media stories… I can't believe that I am doing so much better, no more trach, no more vent, no feeding tubes… nothing….

I have been busy living life.. Who knew life could be so darn busy… In the past, a shower was a big project for me…. Now I am gardening like a mad women, swimming, boating, water tubing.   Breathing… Yes sweet breathing.

I go back and fourth to Boston all the time as they are the only place that can take care of me. I recently went back for an abdominal surgery and turned around five days later and went back to see my surgeon honored at a Red Sox game. 

I will attach some pictures…. The news coverage has spread like wild fire.  I have always been extremely public about my health and my situation….. Thankfully because of that several peoples's lives have already been saved….. My story has been on most of the ABC new programs and some of the local Boston ones...

As a result I am in the process of starting a Non Profit foundation for Tracheo-Broncho-Malacia Airway Foundation TBMAF…..   It is so exciting to be working along side of surgeons, researchers and patients who had no hope or no where to turn and to be able to share my story and send them to Beth Israel in Boston….  It has been amazing….. So grateful to have met some of the patients who have seen my story and then went on to be diagnosed.

I missed Jack's 6th gotcha day as I was in Boston… I think he understands the purpose I am on and would approve.  Jack is doing great.. Bossy as ever ……  

I am looking forward to seeing what else life has in store for Jack and I …. Right now it feels like a fairy tale.

I am sorry again I missed so many messages, even one would make me feel bad, I always try to answer people back.. between that the new foundation, Jack, living life and helping others get to Boston, I am happily busy.

I don't see things slowing down until the Fall. I have more trips to Boston scheduled and more media.. Hooray for disease recognition. No one should ever suffocate endlessly….. 

THANK YOU So much for inquiring and keeping  up with Jack and me!! We are good, we are happy and we are loving this season in our life..

[a.k.a. Rodney]

Great story, Jen. I joined DK approx 3 yrs ago and have read many of your posts. Been off for over 12 mo and now return to your great & inspiring story. You have been very brave and courageous and selfless in sharing your story and info. I believe you and others have & will be rewarded b/c of your terrific approach and so caring and open an attitude that you have. Best of luck in the future!

[Nancy, Ned, Clancy, and Charlie]

Congratulations on your wonderful recovery.  Enjoy!

[Jennifer and Jack]

Thanks!!! This by far is the best season I have ever had in my life! Every day is truly. Enter and better! Though I am working hard on the foundation, on recovery, I am working equally hard having fun!!

[Carol and Banjo]

Jennifer, You look fabulous and I'm so happy you have a new, exciting, productive lease on life!!!   

[Pam & Trixie]

Wow!   How incredibly WONDERFUL!!!

[Jennifer and Jack]

I love Boston, if I didn't have such strong relational ties here, Imwould move to Boston in a second. I would work for my surgeons.

I am eternally grateful for this time I have with Jack, I have spoiled him so much. I need to tighten the reigns a bit but it's so hard for me. I know how precious life is....

We all are trying to find my new normal, it's been amazing..... Overwhelming and I am still finding boundaries of what if can and can't do

[Cheryl and Finnegan]

Love that you're doing so well and I'll bet Jack is too. You give new meaning to "Boston Strong" :)

[Suzanne & Jack]

Wow!  I've been on DK since 2008 and I remember your early posts.  This news is amazing for you.  I bet Jack is glad to see you active again. 

[Bonnie and Kona]

How wonderful! I'm so happy you are able to use your nursing skills and training.

[Jennifer and Jack]

Thanks, It has been amazing, I am actually getting to use my nursing license again. I do pre-op patient consults with patients who will be undergoing the same surgery as me, helping them answer questions.   I am so grateful for the chance to pay it forward from all the love I have received.