Jennifer and Jack's Blog (38)

Dear Jack….

I don't want to forget a minute of the last several weeks that I have had you all to myself.   I don't know what it is about you, or how you know, but you just know exactly how to melt me.

I can't believe in four months you are going to be seven years old…. My sweet little puppy I remember the first time I heard your tail thumping against the crate.

Since we are on the count down until you go back to Grammies and I go back to Boston…

Hi,

I was looking around on here and realized I had a lot of messages that I never saw. I am SO sorry.  I haven't been on here very often, no where near as much as I would like to be.   

Life is incredible right now, so I guess it is a good thing. So many of you have asked how I am doing…. I post a lot on my FB page, feel free to friend request me (Jennifer Champy)  

As you mostly all know I had a massive life saving surgery in October of this…

Dear Jack

This past year of your life was your mom's best personal victory ever… For anyone interested you can read more story of how I went from Hospice to much better health and watch the news reports here.  

http://www.bidmc.org/News/Around-BIDMC/2015/February/Champy-Tracheobronchomalacia.aspx ;

I spent the most time away from you this year than I…

Hi,

I know I seldom post on here but I read on here often.   This past year, 2014 was both the most trying, difficult, defeating and almost life ending and at the same time the best, best year of my entire life.

I have spent the past year with a trach in my neck  hooked up to a vent breathing machine because I had a very rare airway disease called Tracheabronchial Malacia, I had 100 percent collapse of my airway, I was able to get air into my lungs but not…

Sweet Precious Jack… I am writing this a little early as it looks like your actual birthday day is not going to be a good one for me, So I will write now and tomorrow I will rub your belly all day long and on the 6th.. I am sure your Grammie will spoil you rotten.   You won't have any idea as we treat you every day as if it is your birthday.

There isn't a toy or a thing I can think of that you need, would want or could even fathom.  So for your birthday I bought special…

Hi,

I figured I would give those who would like an update my update… No offense will be taken if you don't want to read it, but I actually was surprised and amazing blessed with how many people have asked. Thank you so much.   

I have no idea where I left off as things have been pretty non-stop since, well I can't remember…… Several months ago, I was to the point in my health where I was wheel chair bound, unable to come…

I am writing so there is always good record of how amazing you are.. In a few days you will be four years and six months.. You half birthday...... I have decided to start celebrating your half birthdays because there is never going to be enough birthdays for us to share ever, no matter how long we both live.

It feels like yesterday I heard your tail thump in that crate for the first time and I will never get that sound out of my head.... You have been on a diet since…

I love the blogs on here that I have of different phases in Jack's life because it is like his "baby book" 

Jack is doing very well at four years old.. This year instead of titers like we did for three years before, we did the three year vaccine... Mostly for money reason but also, I am okay with a vaccine booster three years later or I am telling myself that because I didn't really have a choice. :)

Jack also had to get his Rabies Vaccine.. We actually leave in…

I have been leaving bits and pieces of updates through blogs and posts on other people's stuff so since a few of you asked me I figured I would type a quick update.

First the good news.. Jack is doing amazing.. He is finally at a healthy weight after being underweight for so long. He is on just cortisol replacement for now and is doing well except for heat intolerance.  He seems to have adapted very well to my lifestyle of living with me or being with my mom and molly. There…

Lately everywhere I turn there has been sadness, sickness, diseases, death, horribly desperate situations. I can't find a happy place anymore. On here we have had heart ache after heart ache. On my Cystic Fibrosis forums we are having death after death of even small children. On Facebook I have friends who have lost their children to heart disease, brain cancer, and lung disease. All the rescue groups I belong to are posting picture after picture of beautiful dogs that have been abused, who…

I spend a great deal of time on the internet, on Facebook and on the page I am the moderator on. I usually start out doing a treatment with my stuff and hours later I am still there.

I am fascinated by people's Facebook statuses. Some people post simple about the every day stressors of life... How their kids are driving them crazy, how they can't wait for school to start again, how their job sucks, how their spouse pissed them off...... 

Somehow for me.. it…

Next week is going to be super busy.... Doctors appointments, bringing Jack to my moms house and then I am off again... We leave for the Cleveland Clinic on Thursday for a Friday appointment and testing.

We are hoping to get all the testing done in one day... Not sure if they can or not, if not we will be at the hotel over the weekend and do the rest of the testing on Monday.

June 15th is the planned stop date of my IV antibiotics... I started IV antibiotics in…

Well I am hoping to be leaving on a jet plane,. With all the luggage I have, I am not sure we ever will make it off the ground.

Finally after a whole year of waiting, doing fund raising, and waiting for my insurance to change so I can go out of state. I am this Saturday headed to National Jewish Hospital. I will be gone at least 14 days, maybe a little longer.  National Jewish is one of the top Cystic Fibrosis Hospitals in the Country but more importantly then then they are…

This was one of the first pictures I saw of Jack, not the first..but close.... Who could not fall madly in love... When I looked at that picture, I had mad love for him and mad fear.. Fear that I had no idea what I was going to do with a live creature that pee's and poops...

I never grew up with dogs... being an OCD person I couldn't imagine how he would mix into my…

Yes that is Jack in a pot, trying to "bloom where he is planted" Actually he was soaking up some sun. That is my theme lately... I am trying to go with the flow, bloom where I am planted even if I hate and despise the situations I am in. I choose to try to find the good, the flowers through the weeds.. and I guess Jack does too

I feel like I wanted to write on…

 I love Brownies with nuts in them!

The bacteria I am culturing that I have been doing IV antibiotics for for five months eight hours a day is growing stronger then it was before I started treatment and they don't know why and that scares me beyond imagination.

I have a friend I have never met before in person but met online through our breeder's fan club I moderate and is coming to see me this weekend and I am so excited!!!!! All the way from Wisconsin, just to see little old…

I wanted to update, so many of you have become so dear to me, I have so many private messages and emails that I have not been able to keep up so I figure a group email in the form of a Blog would do!!!!!

I am very pleased to announce both Jack and I are coming along amazingly well!!!  The day my mom left was hard for Jack and I both. Jack was really acting out at yet another change and well I was kind of terrified at being home alone. Some wise women on here were right, we…

 About 15 years ago I was really struggling with my diagnoses, my life and how hard things were for me. I am a believer in God... and I would pray, and ask God why if He could , would He not removed the perceived great amount of suffering I felt like I was enduring. I felt like I was a nice person... I didn't get it..

I started dreaming about butterflies.. every night when I went to bed. I would pray and ask God to take this from me because I didn't want to deal with this…

I am talking about me... yes me, the girl who was just hog tied to a bed for a week with a breathing tube shoved down my throat, a collapsed lung, and pneumonia, The girl who has to do 18 hours of IV therapy a day until further notice. Hours of breathing treatments, The girl with two college degrees but on Medicaid and living mostly off her family...

In the bible it says where sin abounds, grace abounds even more.. or something close to that.....  I will tell you that for me…

Tomorrow, I will be turning 39 years old.. I have no idea how that happen... LOL.. Last thing I knew I was 16 and so excited it was one more year till I could drive.

So I will admit, I was not really wanting to acknowledge this birthday.. I was going to skip it sort of, You know wait for the big 40 next year.. The week before my birthday is the DK cruise, I will be going with one of my bestfriends and a bunch of girl friends.. I was just going to focus on…