Hello From Jack and me!!

[Jennifer and Jack]

Hi,

I was looking around on here and realized I had a lot of messages that I never saw. I am SO sorry.  I haven't been on here very often, no where near as much as I would like to be.   

Life is incredible right now, so I guess it is a good thing. So many of you have asked how I am doing…. I post a lot on my FB page, feel free to friend request me (Jennifer Champy)  

As you mostly all know I had a massive life saving surgery in October of this year and I went from being in Hospice to doing New Media stories… I can't believe that I am doing so much better, no more trach, no more vent, no feeding tubes… nothing….

I have been busy living life.. Who knew life could be so darn busy… In the past, a shower was a big project for me…. Now I am gardening like a mad women, swimming, boating, water tubing.   Breathing… Yes sweet breathing.

I go back and fourth to Boston all the time as they are the only place that can take care of me. I recently went back for an abdominal surgery and turned around five days later and went back to see my surgeon honored at a Red Sox game. 

I will attach some pictures…. The news coverage has spread like wild fire.  I have always been extremely public about my health and my situation….. Thankfully because of that several peoples's lives have already been saved….. My story has been on most of the ABC new programs and some of the local Boston ones...

As a result I am in the process of starting a Non Profit foundation for Tracheo-Broncho-Malacia Airway Foundation TBMAF…..   It is so exciting to be working along side of surgeons, researchers and patients who had no hope or no where to turn and to be able to share my story and send them to Beth Israel in Boston….  It has been amazing….. So grateful to have met some of the patients who have seen my story and then went on to be diagnosed.

I missed Jack's 6th gotcha day as I was in Boston… I think he understands the purpose I am on and would approve.  Jack is doing great.. Bossy as ever ……  

I am looking forward to seeing what else life has in store for Jack and I …. Right now it feels like a fairy tale.

I am sorry again I missed so many messages, even one would make me feel bad, I always try to answer people back.. between that the new foundation, Jack, living life and helping others get to Boston, I am happily busy.

I don't see things slowing down until the Fall. I have more trips to Boston scheduled and more media.. Hooray for disease recognition. No one should ever suffocate endlessly….. 

THANK YOU So much for inquiring and keeping  up with Jack and me!! We are good, we are happy and we are loving this season in our life..

[BG and Gavin]

Great news Jenn. Glad to hear through your struggles you are able to make a difference for others.

[Jennifer and Jack]

THanks, I am so bogged down with legal paper work that sometimes I need a break for it so I am rewarding myself with DK time when my mind gets blown from the details of all this paper work.

[Lonnie & Libby Lu]

You are amazing Jennifer and so happy things are only getting better each day!   

[Gail and Bailey]

It is wonderful to see you doing so well and enjoying life!!  Big hugs to you and Jack!

[Stella]

Nice to see you back on DK!! Keep up the good work, you are doing amazing things.

[Linda, Charlie Brown and Beau]

So good to hear you are loving life once again!  And now, you are helping others become aware of TBMAF.  You go girl.  Doodle hugs to Jack too!

[Jennifer and Jack]

Thanks, it has been an incredible feeling…. I am so grateful for this time in my life where things are going well and where I can help others hopefully…….. One of the biggest non profit foundations was formed by two mom and today it is a multimillion dollar foundation that has actually raised enough money that there is medication known to stop Cystic Fibrosis in it's tracks… I happen to be lucky enough to have the genes that it works for.

[Christine & Shelby]

You go Jen! What an amazing story and I am so glad to hear/see you making the most of every day and trying to help others as well!

[Bonnie and Kona]

I love to hear how well you are doing. Your goal of making Tracheo-Broncho-Malacia better understood is noble and there may be people on DK who don't know that's why they cannot breathe...one more avenue of exposure. After your years of striving, it is delightful to hear how much improved you are. Give big doodle kisses to Jack! Keep up your good work. So happy you have found your miracle!