Dr. Doodle

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Comment by Susan and Sasha on June 18, 2011 at 12:00pm

Hello everyone...

I didn't even know this group was here...and just happened to see a post from Bonnie!

I'm  glad that I did...

Bonnie...I'm so sorry that both you and your daughter are suffering from migraines!

I know how painful they are...as I suffer from them myself.

Sometimes daily...at least weekly!

I'm going through a "migraine flair" right now...due to the terrible weather we are having!! 

My main trigger is the barametric pressure...so with all of the rain we have been having...it hasn't been good!  Ugh...

Thankfully...I went to a specialist in NYC...and am on some really good medication.

A daily preventative...a pill when a migraine begins...and then pain pills.

It didn't stop them completely...but the migraines are at least now controlled with medication...and that's a good thing!  (smile)

No side effects either...which is wonderful!

I'd be happy to share the types of medication with you if you're interested in talking about them with your doctor.

I have been So thankful to not wake up with a migraiine every day...that I want to share it with anyone who is suffering with them!

I wish you and your daughter the very best....

 

 

 

Comment by Bonnie and Kona on June 17, 2011 at 11:54am

Lorraine, Thank you for your kindness. Yes, there are migraines on my side of the family but none that were daily that I know of. This is a really bad week. I have just signed up to get groceries delivered. I hope it works out well. That would be one less thing my DH would need to do for us. I've been seeing a neurologist for 10 years. He is very sympathetic and has tried oodles of options but seems to have given up now that I have rejected the preventative meds that didn't work. My daughter tried to make an appointment at a special migraine clinic in San Francisco last July and is still on the waiting list to be seen! That is very discouraging.

 

I understand the shock of not being in pain. It is so wonderful on a day that it happens! I hope you have lots every week!

Comment by Lorraine Bromley on June 17, 2011 at 9:36am

Just an update on my situation, I am still on the low fat non dairy diet and we have a dietition appointment in two weeks to help cope with this new diet and help us to stick with it properly. I had a problem after getting home from the hospital that my medication meloxicam was very hard on my stomach so I was trying not to take it. But I only work two days a week and I wanted to get back to work so I was taking it for a few days a week just so I could get out of bed for work. This wasn't a good thing to do so the dr started me on another anti-inflammatory except it isn't taken by mouth :( So I take it suppository once a day. It is helping alot. So my stomach should be getting better as my thyroid levels are creeping back up to normal, I am attempting to eat more regular healthy meals and with less pain again my activity levels are a bit better. I know this will sound stupid but since it is the first time in a long time I wake up in no pain I lay there instead of leaping out of bed. I am scared that if I move a muscle it will bring on pain so I lay there and enjoy it. Silly I know. I am learning to get up and take advantage but it really is a funny feeling to start out a day without pain. I hope everyone here gets this opportunity if only for a day.

Comment by Lorraine Bromley on June 17, 2011 at 9:27am

Jeez Bonnie this is horrible. I feel so badly for you as a MoM too. I have ehlers danlos syndrome and as a genetic disorder I have passed it to one of my children. The worst part of having something wrong is giving it to one of your kids. The guilt and all the other thoughts can make things worse. But you are also a great advocate for her. I hope that you can look into your health and find something that relates to hers and that might become the answer to the problems. Maybe a geneticist app as it seems strange that you both have it. Does anyone in your extended family have or have had this as well. Gather all the information you can on your symptoms and arm yourself with knowledge. I hope that you have a great neurologist on board as well. 

 

Comment by Nancy, Ned, Clancy, and Charlie on June 3, 2011 at 8:38pm

Bonnie, I am so glad that you are both getting a bit of relief. Though my migraines were frequent and terrible for me, they were nothing in the scheme of life.  I count my lucky stars that I seldom have them any more and when I do, they actually go away after some medicine, cold cloths, and rest.

Comment by Bonnie and Kona on June 2, 2011 at 10:27pm

Your thoughtful responses to my post have tears welling up. It is a hard life but my daughter has no life. I wish I could take it all. Thank you for your understanding.

Comment by Jennifer and Jack on June 2, 2011 at 8:57pm

For some reason I didn't see this before now, I am so sorry. Migraines are horrible. I have only had a few in my life related to another condition. It is certainly debilitating. I was able to see a top Neurologist in the US that specializes in Migraines and what we found out is I have an a-typical form of migraines called Basilar Artery, AKA Bickerstaff syndrome. All the typical migraine medications work by vasoconsticting the arteries because it cuts down on the pain, however, in my case, I was having spasms in the main artery in my brain which was not giving me enough blood to my head, so I had severe pain, numbness in my arms, tongue and slurred and delayed speech, They put me on a blood pressure medication and since then I have only had one break through migraine, but I am not allowed to ever have any tryptains which is the typical treatment for migraines. The amount of migraines your daughter is having is extremely severe....Have you had your house tested for different chemicals? Have you seen really good neurologist that specialize in migraines? I am on disability, though I am on the working disabled, but I am on it for my lungs and I clearly met the requirments on three levels and only needed to meet them on one level to technically qualify. I was denied twice and finally won when my lawyer did an emergency financial hardship appeal.  Most likely you will win but will have to go to court.  I wish you the best of luck for both you and your daughter. That is a tough quality of life

Comment by Nancy, Ned, Clancy, and Charlie on June 2, 2011 at 8:31pm

Bonnie, I am so sorry for you and your daughter suffering so much from migraines.  I was getting them several times a week years ago. I was sent to a neurologist who put me on two medications - one is also for bi-polar disorder and the other just put me to sleep so I could only take it at night.  It worked  and my migraine frequency was reduced.  I hated being on the meds though and after a few years was able to wean myself off of them without increasing the frequency.  However, when I went through menopause I found that I only get them once in a while (something good for me for getting older).  I hope you and your daughter get some relief from the magnesium.  I also read that vitamin B sometimes helps.

Comment by Bonnie and Kona on June 1, 2011 at 11:23pm

Thank you, Ricki. I've seen that brand on the Internet.

Comment by Ricki and Tara (doodle) on June 1, 2011 at 9:12pm

Yes, it really helps me. I can barely function without it! It took me years to find some that I could take high doses of without the dreaded side effects! I have found one oral type and one spray on type that I can tolerate quite well. Thank goodness.  The spray on type might be good for your friend as it goes right into the muscles. There are several brands available but I think they are all the same thing. I use DermaMag. I hope you can find some further relief using the higher dose too!

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