Dr. Doodle

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Comment by Bonnie and Kona on June 1, 2011 at 8:39pm

Ricki, My daughter and I started taking 800 mg of mg a day about a month ago and have seen some improvement. Thank you for mentioning this. We tried it a year and a half ago but only 400 mg. The larger dose could be an answer for some of it anyway. Hoping so! Is it helping you? I have a good friend with fibromyalgia. I suggested it to her.

Comment by Ricki and Tara (doodle) on June 1, 2011 at 8:30pm

Bonnie, I am so sorry to hear of you and your daughter's horrible situation with headaches. It sounds just miserable!!  I'm glad you joined our group! I have been doing quite a bit of research on magnesium supplementation as I need to supplement large amounts for my own situation. However in my research I often see where it is used for reducing migraine. Have you tried supplementing magnesium or know of it being used in this way?  And YES, where would we be without our doodles?

Comment by Bonnie and Kona on June 1, 2011 at 7:02pm

I just stumbled upon this group. My daughter and I have chronic daily migraines. Mine started over 11 years ago with 2-4 migraines a week. About 3 years ago they increased to 4-7 days a week. My daughter is 37 and has been unemployed for the last three years because she has migraines almost every day. We have tried all sorts of preventative medications. After being on two for several years I went off of them last summer and discovered that I have no more frequent or severe migraines than when I was on the horrible preventatives that had horrendous side-effects. Right now we are trying to get disability for our daughter. She was denied the first application and has appealed that decision about six months ago. She cannot possibly work. She can barely come out of her room. Most days she is alone in her darkened room in horrific pain. I spend about three days in that condition each week. I consider my life bearable. Her's, unbearable. We love, love, love dogs. She is another "dog whisperer". I am sad to learn that there are so many others suffering in pain and isolation. I am grateful though that we have the unconditional love of our beautiful doodles to cheer us!

Comment by Jennifer and Jack on May 21, 2011 at 3:51pm

I just saw this too, I am sorry I started baby sitting a six week old this past week and I have been so busy in the  best possible way. I totally agree about having a care plan mapped out to give to your doctors, I almost died when I was on life support on Thanksgiving of last year, the doctors who were taking care of me omitted one of the medications that I need to stay alive, I have addison's and went with out steroids, Thank God one of my friends caught on and 13 days later I got the medication I needed. I hope you are feeling better, did they talk about taking your gallbladder out?

Comment by Ricki and Tara (doodle) on May 21, 2011 at 3:27pm

Lorraine, I just saw your post and hope you have improved by now with your "sludge" problem!! OH MY!!  Maybe your doc can set you up with a good dietician to create a healthy diet for you to follow? Take care and keep us posted!!!

Comment by Lorraine Bromley on May 20, 2011 at 5:34pm

I am going to dr on Tuesday and I am going to discuss the underlying problems to hope avoid surgery. This is a good thought. Thanks. I am very afraid of gaining weight as I have gained 30 pds since quitting full time work and being inactive due to my health. But I think feeding myself is the answer its just telling my tongue and tummy to agree instead of fighting with the gall bladder over it.

Comment by Nancy, Ned, Clancy, and Charlie on May 20, 2011 at 3:26pm

Lorraine, I am sorry to hear this.  This may not apply at all for you, but my mom tends not to eat or eat correctly (hers is age related with some swallowing problems) but she was given a prescription for Megace to increase her appetite.

Comment by Lorraine Bromley on May 20, 2011 at 10:05am

Ok just an update I have sludge! My gallbladder has sludge. THis is all caused by my underlying thyroid condition and poor eating habits. My body has been in starvation mode for awhile and I find eating difficult. Then I eat the wrong things. I am trying to eat and drink but it isn't going well. I hope I can get a diet that works for me and restarts my digestion. I am the heaviest anorexic I know.

Comment by Lorraine Bromley on May 19, 2011 at 1:09pm

Hi there all. 

I just wanted to tell you that I was admitted to hosp Sunday afternoon and got home Wednesday afternoon. I have not had any answers as to why I was experiencing pain around the rib cage (bra line) vomiting and diarrhea. I got iv treatment and testing. Aaortic dissection ruled out. No fluid around heart or lungs. Blood work ok. Having Ehlers Danlos Syndrome really complicated issues needlessly! My Dr on Holidays also was disastrous. I am suggesting that everyone have a document drawn up that outlines what your normal health situation is and what is necessary to manage that norm so as not to cloud any acute situation with unnecessary complications of your regular health care. Think about doing this for yourself and those that you love. Have a patient advocate that is well informed PRIOR to an emergency. 

Comment by Lorraine Bromley on April 17, 2011 at 3:12pm

Hi Betty! So far we're  good for what ails ya!

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